Plinth Blog Special Needs Parenting

27Nov/171

Having a Child with Down Syndrome, Part CXXXIV: Three Nice Surprises

Alice and I did our shopping today, as is our wont. We made our list, which was a bit of a trial. I'm trying to have Alice type in the list all by herself instead of transcribing it, but Alice's spelling is not so good and there appear to be a number of missing steps in the scaffold necessary for mastery. I'm trying to get her to sound out what she's spelling, which I'm hoping will help bridge the gap to the word assistance on her iPad. The problem is that Alice wants to type in the starting sound and the ending sound skipping everything in the middle without vocalizing. When I can convince her to vocalize, things go much better.

We have a routine, which I have detailed in the past, but today Alice threw an interesting curve ball. When we got to the produce section, she told me that she was getting lemons and limes and that I should get the spinach and the mushrooms. "We split up." OK - I have no problem with that, but it was brand new for her to suggest a divide-and-conquer approach to shopping. I got the two items she told me and she got hers.

Surprise number two: Alice told me, "wait right here - I get the broccoli." Again, I have no problem with this, but keep in mind that Alice had a stroke and her right hand doesn't work as well as her left. So imagine trying to open a typical grocery store plastic bag under those circumstances. I said nothing and Alice did it all by herself. She didn't exactly pick the best broccoli, but we're working on that.

Surprise number three: Alice picked a box of cereal for the week (store brand Rice Chex, gluten free). Before she put it in the cart, she spent some time reading the recipe on the back for a snack mix. It was crappy: starch, more starch, some grease and salt (powdered ranch dressing). She read through the entire recipe. Unfortunately several of the ingredients had gluten, but there were substitutes we could find. I pointed out the gluten and told her that we could find substitutes if she wanted to make it. Why? Two reasons: authentic activities that involve reading and following directions are more powerful when your child wants to do them and second Alice had a rough Thanksgiving - a lot of maladaptive behaviors - and there's power in saying 'yes' instead of 'no' when she's clearly working. She seemed confused that the recipe made a snack and was not for breakfast and decided that she didn't want to make it. That's fine.

Given that we a rough time over Thanksgiving, it was really a joy to get these three surprises today.

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  1. Way to go Alice and your independence at the store!!! Great job to Dad as well.


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