Having a Child with Down Syndrome, Part XXIII: Awesomesauce

Copyright © 2012 Stephen Hawley, all rights reserved.

Dear Stuart,

You’ll read all of this some day.  Maybe you’ll be old enough to understand.  Your mom and dad, like just about every set of parents in the world, really don’t know what we’re doing.  We try.  We fail.  We succeed.  Last week, you were teasing your sister.  I’m sensitive about that as I got teased a lot growing up and didn’t care for it at all.  You and Alice were trying to negotiate what to watch on TV.  You declared that ‘Backyardigans is a baby show.”  I waited until you agreed and then I asked you to come have a talk with me.

We talked about why you thought that and you were pretty frustrated that Alice likes to watch the same things over and over.  I can understand that.  You have always preferred novelty.  When we talked about it more, I asked you how you think Alice felt when she watched the show.  Comforted.  Safe.  Happy.  I asked you about your animal blanket.  You said that you loved it and you were going to have it for the rest of your life.  Ah.  And how do you feel when you have your blanket?  Comforted.  Safe.  Happy.  And do you think that Backyardigans might be Alice’s animal blanket?  And then I watched the light turn on.

You are a precious boy, Stuart.

1 thought on “Having a Child with Down Syndrome, Part XXIII: Awesomesauce

  1. Jen Kopf

    Steve – you are amazing. What a great job you are doing and I am honored to call you a friend. Looking forward to seeing you next weekend..Jen


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