Having a Child with Down Syndrome, Part LXXXVII: Balancing Act

Copyright © 2015 Stephen Hawley, all rights reserved.

I’ve been having internal issues with Alice recently. A lot of it stems from some regressive behaviors which have been compounded by low expectations of people in the general public. I’ve also been looking at how she’s been progressing in school compared with her peers and it’s depressing. She’s included, she’s participating, but it’s clear that she’s not really¬†getting the material. With all of that I worry about her independence. I mean, how long are we going to continue making sure she bathes properly?

And then we get some really weird things.

For example, we were at a wedding a week ago and Alice was absolutely in love with dancing.


And here is Alice in her element. She’s in a social situation and is having the time of her life.

We went to see Pan this past weekend and on the way home, we were listening to the radio and they were playing an American Authors song, Best Day of My Life:

Alice’s 5th grade class learned this song for the grade school graduation some 5 months ago. Alice was singing along and she was more or less on key, in sync with the song and had the words.

And herein is the balancing act: how do we find the balancing point of making sure she learns the things that will be important for her to live independently as well as the things that she wants to learn? How do we find the balancing point for knowing who to trust and dance with and who to stay away from? What’s worse is that all the balance points are shifty little buggers.


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