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Having a Child with Down Syndrome, Part XXII: Wish I’d Seen This Earlier

Copyright © 2012, Stephen Hawley, all rights reserved. I was at the MDSC annual conference today and in scanning the various tables set up, I found The Ten Commandments for Helping Parents of Children with Special Needs By Michele Stiefel.  A casual read makes it look like something for grand parents or other family members.  Reading it […]

Copyright © 2012, Stephen Hawley, all rights reserved.

I was at the MDSC annual conference today and in scanning the various tables set up, I found The Ten Commandments for Helping Parents of Children with Special Needs By Michele Stiefel.  A casual read makes it look like something for grand parents or other family members.  Reading it closer, I decided that was actually for me and Evie.  It is so nice to simply hear someone else say that it’s OK to feel that way that we do, which may be all over the map on any given day.  Less so now than early on, but we still have our rough days.

The conference was good and it was nice to see the photo I submitted for the conference up on the big screen as well as on the MDSC facebook page.  This year the theme was Style Down Syndrome – an intentional owning and repurposing of a GC article that declared that Boston suffers from a kind of “Style Down Syndrome, where a little extra ruins everything.”  I’m glad to see their constructive approach, including contacting GQ directly.  Dr. Brian Skotko posted a blog article about it that got a fair amount of coverage inviting GC to mock his pants and not his sister. I posted the story to Metafilter and found in the comments that the author of that particular gem is an ex-boyfriend of one of Metafilter’s members.

 

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