Having a Child with Down Syndrome, Part CXXXI: Oh, She’s a Teen

There’s no doubt that Alice is 15. Yes, there are a number of her behaviors that are not age appropriate, but there are a lot that are. For example, she will ask permission for something and then if she doesn’t like the answer tries to go ahead with what she wanted anyway. And then she’ll dig in her heels and still try. Again. And Again. Sometimes all it takes is a little bit of, “Remember Alice, it’s a school day so you don’t get TV, right?” “Oh yeah, daddy! You right. You Right!” Sometimes it’s not so simple.

Recently, Alice has been taking to demanding attention close to bedtime. It’s been frustrating because she’s been ultra persistent. I’ve taken to candy coating my response and being firm about it.

“Daddy – there’s a fly in my room.”

“Is it bigger than you?”


“Then don’t worry about it. Good night! I love you.”

“But daddy there’s a-”

“Good night! I love you.”

“But daddy I can’t go to sleep. There’s a-”

“Good night! I love you.”


“Good night! I love you.”

“Stop saying that!”

“Good night! I love you.”